Alternate Title: I'm Really Bad at Updating Consistently
Yeah, yeah, yeah, I said I'd be updating regularly and then I didn't. This one's going to be a long(er) one to make up for it/explain why I dropped off the planet.
Allow me to preface this by saying that in a conversation with my doctor, I was told that my surgery was "one of the least eventful" he's had. Nothing noteworthy happened. The removed organs were sent out for pathology, as is standard practice, and when the results came back, there was nothing noteworthy. Everything was the right size, shape, weight, color, and texture. By all accounts, everything that was removed (including the cervix that has had abnormal cells in the recent past) was completely and utterly healthy. There is no explanation as to why my uterus has tried to kill me every time I've had a period. Apparently, she was just a bitch. A perfectly normal-looking, healthy bitch.
As one might expect from an encounter with anesthesia and narcotics, there is a certain amount of fuzziness to the surgery, the immediate recovery, and even the first few days of at-home recovery. Add to this my standing memory issues (from my mental health disorders) and you've got a bit of a jumble. Dates and times are not likely to be accurate. Deal with it; I have to.
For reasons, I'm going to go back to immediate post-operative recovery for this next bit. My chest was sore as hell for the first couple of days. Almost alarmingly so. To the point that I (vaguely) recall musing that I would not be surprised to find out that I had needed chest compressions at some point. I did not need chest compressions at any point; the pain was a result of a normal part of the surgery - inflating the abdomen with CO2 for purposes of visibility. In hindsight, this likely also accounts for the neck/shoulder/upper back pain. From research, this gas can take up to 2 weeks to fully dissipate from the body. More on that later.
Also, shoutout to Cameron, who was good enough to bring my stuff to the hospital after I was brought to a room. I wasn't terribly coherent when they were there, and while I'm pretty sure I thanked them, it's still worth mentioning. Having a support system is important.
On a related note, my partner was amazing the day of the surgery. I mentioned that he had to leave before I got wheeled to the back, because work. What I forgot to mention is that as soon as he was done with work, he went home to check on the doggos, then immediately came to the hospital. And he stayed in my room for a fairly impressive chunk of time. How long? I don't know; I was too busy being completely out of it from anesthesia. But while I was in and out of wakefulness, I saw him at the table on the other side of the room, playing some game or other on his laptop. And before anyone comes at him for playing a game, shut the fuck up. I was asleep, or at least mostly so. And when I did wake up, the few times that I was coherent, seeing him there and hearing the ticky-tappy of the keys was incredibly comforting. It was a small bit of "normal" in the middle of a severely fucking weird situation, and honestly, it was huge. I don't know how long he was there, but it was long enough that I felt totally fine with him heading home when he asked if it was ok. (I'm pretty sure he asked if it was ok, not just told me he was going.)
Ok, moving forward to Day 5 Post-Yeet: After an unreasonable amount of nausea and misery, I finally got my ass in gear and called my doctor about getting some better anti-nausea meds. It took most of the day to get them, because I was NOT good to drive, and I had to wait for Lee to get home to pick them up, but they were definitely a big help. I also discussed my failure to poop with my doctor. He thought part of it was because I just didn't have much in my body because of the nausea, part of it was that many of the meds (anesthesia, narcotics, and zofran) could cause constipation, and, as was pointed out by a friend, part of it was likely because my goddamn intestines were physically shifting inside my abdominal cavity. That's gonna throw your system into all kinds of turmoil. (Note: I have since pooped. My body is finally figuring out how eating and digestion work.)
Day 8 Post-Yeet: Lee had been talking about needing to go out and buy some new cold-weather clothes. Ideally, a coat, some long-sleeved shirts, some decent gloves. We talked about where to go. Target was an option, but not a great one, Kohl's was somewhat better, but ultimately, we decided on the mall. And I was going with. Yes, this was the day after Black Friday. Yes, we realized this. But the mall had more options, and so the mall was the best chance to find what we were after.
We found a coat. No shirts, no gloves, nowhere near enough people wearing masks. Our trip lasted all of 35 minutes before I was far too tired to continue and his knees were too painful to want to. We went home and crashed. Hard. Typically, on Sunday mornings, we go to the local farmer's market. It's less than a mile away from the house. But we both decided we were too fucking tired for that shit. So we didn't. Sunday (day 9) was spent doing absolutely fuck-all.
Day 10 Post-Yeet: After another night of piss-poor sleep (woke up 3x to pee, stayed up from about 3:30 to 7:30), I decided to take a couple of hours of sick time so I could get a nap in and take a shower. I had just started trying to get my work computer to behave when I got a call from Lee. Since I don't know what he's comfortable sharing, I'm going to be vague, but suffice it to say there was a medication mix-up, and he ultimately wound up in the ER for the better part of the day. Somehow, he got incredibly lucky and had no major/lasting effects - seizure and stroke were possibilities - but suffice it to say, I was running on 4 hours of sleep and a metric fuckload of adrenaline. (Note to self: look for studies that show the effects of adrenaline surges on surgical healing.) At least I slept reasonably well last night.
All of this leads us to...
Day 11 Post-Yeet (fucking finally!)
I'm still pretty tired, and though most of the nausea has abated, I still get occasional waves of it. They're much less intense and much shorter-lived, but they do still happen. Most notably, they happen when the edges of the dermabond peel up and catch on whatever I'm wearing. It doesn't hurt, mind you, it just feels very weird, and for some reason (maybe because it's in the stomach/intestinal region, maybe not) that feeling just makes my stomach do flip-flops. I'm not entirely sure when the peeling started. The dermabond was applied in pretty massive patches, so as it's been peeling up, I've been (very carefully) snipping the peeled edges off with (very sharp) tiny cuticle scissors (that have been rubbed thoroughly with alcohol). Today is the first time I've gotten within half an inch of one of the incisions, and only then because the dermabond is already coming off on its own, and trimming the free edges is keeping it from catching and getting pulled further than is ready to come off. As a note, some of it seems to be...melting into my skin? It's weird. And because fabric is a thing, it's quite discolored. I would very much like to take some exfoliant and scrub at those areas, but scrubbing is not a thing right now, because although everything appears to be healing well, it's still tender. And it's not just discoloration from fabric. I'm bruised all to hell. This is normal and expected; they did cut into me and ram (steel?) tubes through the layers of my skin/fat/muscle into my abdominal cavity. I'd be more concerned if there wasn't bruising and tenderness. (Because that would appear to indicate insufficient blood flow and/or nerve damage.)
The general pain is gone. If I sit in the wrong position for too long (stretching in certain ways) or press directly on the regions around any of the incisions, there is still pain. Again, normal and expected. Peeing seems to be more or less normal, which is nice, though I did still buy a Squatty Potty for each bathroom, which was an excellent investment. I'm trying to get back into "normal" eating habits, but that's still a struggle. I just can't eat as much or as often as I used to, which is good, but not the healthiest way to lose weight. And seriously, when I go for my follow-up next week, I REEEEEEEEEEEEALLY hope the doctor clears me for sex. For reasons, it's been roughly 3 weeks already, and I'm climbing the motherfucking walls. I am not good at abstinence. At all. Not even a little.
All in all, things are progressing as they should. I'm healing as I should, with only minor (bizarre, non-threatening) setbacks. (Over the weekend I did have a brief panic over a sharp, stabbing pain in my chest that lasted about 40 minutes. After discussion with my doctor, it was most likely just a fluke, possibly as a result of the last of the aforementioned CO2. Since it passed and has not come back, there's no reason to worry about it.) I will, however, say this: I wish to hell someone had warned me about all of this going into the surgery. I'll clarify:
- I knew there was going to be pain. Someone was going to take a sharp metal object (or four) and stick them into my abdominal cavity. An entire fucking organ (and several related bits) were going to be removed. There were stitches involved. It's going to hurt. Pain is to be expected. And honestly, I can deal with pain. If I need to, I'll take medication to handle it, but ultimately, I figured there was no way that this could hurt much more than a bad period. And ultimately, I was extremely fucking right. From a pain standpoint, the absolute worst of the pain was not as bad as the worst PMDD pain, and was managed with the prescribed medication. Hell, I was off the painkillers entirely by day 4. I think I took an ibuprofen that day. I have had days when period pain was so bad that I genuinely wished for death. As someone who has suffered from mental illness including suicidal ideation and intent for over two decades, I don't say that lightly. The pain related to this surgery was a moderate inconvenience.
- I knew there was going to be discomfort, especially when standing and/or sleeping. I wasn't aware of the type of discomfort (mostly pulling, and just fucking weird feelings), nor of how long they would last, nor of how to combat them. If someone (like, IDK, my doctor?) had warned me and recommended a belly band, I could have been better prepared.
- I knew there was likely to be some nausea for the first day or so after surgery. Nausea is common after surgery, and it's why he sent me home with zofran to begin with. But I read dozens of testimonials (and heard secondhand ones from friends who knew people who had hysterectomies) and none of them mentioned weeks-long nausea, or extreme nausea. This could very well be because I'm weird, but I can't imagine that I'm the only person with this issue?
- I forgot entirely about the potential fallout from removing the IUD along with the uterus. That's on me.
- I was completely unprepared for the whole teaching-myself-how-to-pee-again thing. Not a single soul warned me of that. Not my doctor, not the accounts I read, nothing. There's absolutely no way that I'm in the minority on this one. Shit, I imagine people who have had cesarean sections have to deal with this to some extent. Why the fuck does nobody talk about this?
- I didn't know about the inflation situation and the possible effects (pain, discomfort, etc.) associated with it. I found that out after surgery was completed. Not a huge deal, but still would have been nice to know. Would have been particularly nice to know that there was a possibility that it could cause symptoms that mimic pulmonary embolus.
- Nobody warned me that there was a chance the incisions, particularly the umbilical incision, could leak a brownish fluid (called serous exudate or serosanguineous exudate) days after surgery. It's basically your body trying to get rid of fluid that got trapped in the area of the incision, most often as a result of IV fluids. The color is from the small amounts of blood that end up between the incision and the dermabond. It's normal, and can be aided by applying heat to the affected area 72+ hours after surgery. I was completely in the dark about this and terrified that I was getting an infection. (Infection was ruled out without even a visit to the doctor's office, because there were no other signs of infection - no fever, no excess warmth in the area, no swelling, no redness...)
- Nobody warned me that my goddamn organs would shift! A uterus doesn't take up that much space, and most of your organs are at least partially held in place by muscles and tendons and shit, right? So it didn't even occur to me that my fucking intestines would wriggle themselves into the fist-sized hole all awkward-like. That is a very fucking weird (read: uncomfortable) feeling, and it took several fucking days for it to settle down. *shudder*
- Nobody talks about post-operative fuzziness, either. I'm at day 11 now, and I still have moments where I realize that my brain has been on power save mode. I'm still having difficulty keeping track of things unless I strongly focus on them. Details are getting lost, my attention span isn't great, and my train of thought gets more easily derailed. This is on top of my typical memory and/or concentration issues. "Jumbled" is the word that comes to mind most often. It is less and less each day, but again, it would have been nice to have been given a heads up. (In retrospect, it's well within the realm of possibility that this is something my parents have mentioned in the past, but that I've written off as an issue for older people. I'm 34; their surgeries all happened after age 50. One expects the brain to have an easier time picking back up at younger ages.)
In the long run, I will most likely forget the nausea, the fuzziness, the discomfort, the weird-ass body changes, and the emotional upheaval that has been associated with this surgery. And to be fair, there's a decent chance that's why I wasn't warned. By the time people get around to talking about their surgeries, the secondary issues have subsided, and they're focusing on finishing healing, or are too busy being excited about the results. And in the long run, the couple of weeks of shit as compared to the years of freedom I'm going to have? Yeah, I'm going to focus on the good, too. Ultimately, even if I had been warned about everything, I would have gone through with the surgery. Would I have waited a few months longer? Possibly. Would waiting have made any appreciable difference? Probably not.
And in case anyone still doesn't get why I'm writing this... Look at that list of things I wish I had known going into this surgery. It's not short. Like I said, knowing it wouldn't really have changed anything, but I might have been slightly better prepared if I had been forewarned. I might have had less worry when certain things happened. And I know damn well that my experience is not the be-all-end-all. It may not even be the average experience. But either way, it's an account of what is possible, and if that helps even one person make a decision on how they want to handle their reproductive issues, or helps just one person not completely freak out about post-surgical experiences, then I've done something good.